What is Advocacy Day?
The National ALS Advocacy Day was created in 1998 so people living with this disease and their caregivers can tell their stories to the people who have the most capacity to improve their lives — their elected officials. Our Advocacy Day priorities range from increasing funding for ALS research to making sure ALS patients have access to essential medical care and services.
Advocacy Day also provides an opportunity for patients and caregivers to network with others who understand their stories, learn about cutting-edge government and ALS Association research programs, and ensure that their voices are heard.
Our 2022 Advocacy priorities include:
- Expand federal funding for ALS research
- Urge the federal government to act swiftly to support ALS treatment development and approval
- Create more opportunities for people living with ALS to access emerging ALS treatments
- Ensure the coverage of new ALS treatments by insurance
- Secure funding of programs that increase access to specialized ALS care
- Encourage congress to support policies that benefit people living with ALS
- Advocate for programs in Texas that improve the lives of the ALS community
How You Can Get Involved
Want to stay in the know of all things happening on the advocacy front? Become an ALS advocate! We’ll send you email updates about how you can get involved in ALS advocacy opportunities in Texas and beyond.