by Tanner Hockensmith | May 24, 2017 | Stories
There are many ways, both big and small, to raise ALS awareness. Some people have used their filmmaking or public speaking talents to craft compelling stories of those living with this disease. From TED talks to award-winning documentaries, these videos inspire,...
by Tanner Hockensmith | May 12, 2017 | Advocacy
Although children and teens are very unlikely to develop ALS, that doesn’t mean they aren’t affected by the disease. 85% of people who do have ALS report having children or grandchildren who are directly impacted. Coping with a parent or grandparent’s ALS diagnosis is...
by Tanner Hockensmith | May 10, 2017 | Advocacy
Updated on 5/11: We did it! Thanks to your overwhelming support in petitioning Apple, Siri was updated in less than 24 hours. Now asking Siri, “What is ALS?” brings up the following definition: “Amyotrophic lateral sclerosis (ALS), also known as Lou...
by Tanner Hockensmith | May 6, 2017 | Research, Research News
Based on information as of 5/5/2017 What is Radicava? Radicava™ (edaravone) is a prescription medicine approved by the U.S. Food and Drug Administration (FDA) to treat people with amyotrophic lateral sclerosis (ALS).1 In clinical trials, some people given Radicava...
by Tanner Hockensmith | May 5, 2017 | Research, Research News
Radicava is First Approved Treatment for ALS in Decades The Food and Drug Administration’s (FDA) announced today that it has approved Radicava (edaravone), the first new treatment approved specifically for ALS in 22 years. The FDA approved Radicava less than a year...
