When you or a loved one is diagnosed with ALS, your whole world implodes. You find yourself on a traumatic and isolating journey, having to come to terms with this terrible disease. ALS is a club you never want to be in, but you’re not alone. It is estimated that...
Matt and Laurel Cluthe prepare to take a family road trip from Kansas City to watch a Houston Astros game at Minute Maid Park. The city and team carry many memories for the couple. Both are native Houstonians and diehard Astros fans. From attending games as children...
In an amazing update for the ALS community, on September 29, 2022, the FDA voted to approve ALS drug AMX0035 for the treatment of ALS. This comes a year after Amylyx, a Massachusetts-based pharmaceutical company, submitted a New Drug Application (NDA) for AMX0035, a...
We’ve made a commitment to serve more Texans with ALS and caregivers than ever before. Despite the challenges, from a pandemic that limited in-person contact to natural disasters impacting the community, your unwavering support has made this possible. And for that we...
Lluvia Alzate recently wrote on her blog, “My mom would always say ‘vive la vida que se va y no vuelve’ which means live your life, time goes on and it will never come back.” Now that her mom, Fanny, is living with ALS, Lluvia embraces this motto every day. Lluvia...
