On May 18, 2022, several guests joined ALS Texas for a special virtual ALS advocacy event. During this insightful...
Advocacy Articles
ACT for ALS Act Signed into Law, Bringing Hope to the ALS Community
On December 23, 2021, we reached a groundbreaking milestone for the ALS community. President Joe Biden has just signed...
ALS Association Continues to Put Pressure on the FDA
One month ago on May 25, 2021, representatives from the FDA joined a We Can’t Wait Action Meeting. During this...
We Can’t Wait: ALS Advocates Urge the FDA to Expedite Access to Experimental Therapies
The average life expectancy for someone after an ALS diagnosis is only 2 – 5 years. However, the process of...
Telehealth Coverage for Speech Therapy Services Extended through the Duration of the COVID-19 Pandemic
In a huge win for the ALS community, the Centers for Medicare & Medicaid Services (CMS) expanded telehealth...
ALS Advocacy in Action: Collin’s Letter to His Senator
Fort Worth local Colin Hadley is an ALS Hero and inspiring PALS who advocates for the rights of those living with ALS....
Advocates take to Capitol Hill to Inspire Change
On June 9th-11th fourteen ALS advocates from Texas, along with our Executive Director and Sr. Director of Mission...
Why The Five-Month SSDI Waiting Period For People With ALS Needs to Be Eliminated
Last week the ALS Disability Insurance Act was reintroduced in the 116th Congress. The bill (S.578) aims to eliminate...
ALS Advocacy in Glasgow: One Advocate’s Experience at the 29th International Symposium on ALS/MND
On December 4th, 2018 ALS Advocate Sunny Erasmus joined scientists, health care professionals, and other fellow PALS...
How Sunny Erasmus is Raising Her Voice for ALS
Since being diagnosed with ALS in 2015, right before her 28th birthday, Sunny Erasmus has become a warrior for others...
Texans Travel to Washington, D.C., to Advocate for People with ALS
More than 570 ALS advocates from across the country joined together for the 2018 National ALS Advocacy Conference in...
First Recipient of Harrison Brown Volunteer of the Year Award Honored at the Austin Walk
We had the privilege of awarding the first Harrison Brown Volunteer of the Year award to Whitney Sadler at the 2017...