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Advocacy Articles

Why The Five-Month SSDI Waiting Period For People With ALS Needs to Be Eliminated

Last week the ALS Disability Insurance Act was reintroduced in the 116th Congress. The bill (S.578) aims to eliminate the five month waiting period for disability insurance benefits for those with ALS. Because of the nature of ALS, and how rapidly symptoms can arise...
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ALS Advocacy in Glasgow: One Advocate’s Experience at the 29th International Symposium on ALS/MND

On December 4th, 2018 ALS Advocate Sunny Erasmus  joined scientists, health care professionals, and other fellow PALS as they made their way to Glasgow, Scotland for the 29th international symposium on ALS/MND. During the 5-day symposium attendees and speakers shared...
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How Sunny Erasmus is Raising Her Voice for ALS

Since being diagnosed with ALS in 2015, right before her 28th birthday, Sunny Erasmus has become a warrior for others with the devastating disease. "There are many things that ALS has taken away from me", she says, "but my voice is loud and persistent in the fight to...
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Texans Travel to Washington, D.C., to Advocate for People with ALS

More than 570 ALS advocates from across the country joined together for the 2018 National ALS Advocacy Conference in Washington, D.C., on May 13-15. Nearly every state in the country was represented, with 22 advocates hailing from Texas. Stacey Crowder was one of the...
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