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Disaster Resources for People with ALS

by | Aug 28, 2017

As the devastating effects of Hurricane Harvey continue to unfold, the ALS Association of Texas is working diligently to assess the well-being and needs of ALS patients and their families in the affected areas. This is our first priority – to ensure that our patients are safe and secure and that they can continue to focus on their health with as little disruption as possible.

This unprecedented disaster is likely to have a prolonged impact on those living with ALS and their families. And while the full impact can’t be known just yet, we are providing emergency financial assistance to those forced to evacuate their homes for safer accommodations. And we’ll continue to address these unique needs as they arise. If you or your family are in need of financial assistance, please contact us at

Below is a list of resources for people with ALS and their families who are affected by Hurricane Harvey. Please contact us with any additional questions you may have.

Medical Emergency Evacuation – Coast Guard
*Tell them it is a medical emergency and that you have ALS


Helpful Numbers

In case of emergency, call 911.
For evacuation information, call 211.
For roadside assistance, call 1-800-525-5555.
For TxDOT Statewide Road Closures, call 1-800-452-9292.
For relay service, call 711.

FEMA – residential damage

If you or your family suffer damage from the storm, please register with FEMA by calling 1-800-621-3362 or applying online at

Texas Flood Resources:

  • To qualify for assistance, register your sustained damage with FEMA: 1-800-621-3362
  • FEMA app for iPhone includes emergency information by county here.
  • For information on evacuee hotel’s visit here.
  • Red Cross disaster assistance: 1-877-500-8645
  • If you are in need of help or would like to volunteer, call 211.
  • For information on Texas road closures, click here.
  • Click here to list you and your family with the Red Cross as safe.
  • See safety tips for severe weather here.
  • For assistance filing a personal claim, call the Texas Department of Insurance’s Consumer: 1-800-252-3439

Other helpful resources:

  • American Red Cross app for iPhone, available here.
  • Texas Department of Public Safety site here.
  • Texas Health and Human Services site here.
  • Texas Prepares site here.
  • Texas Department of Housing and Community Affairs site here.

Portlight – medical equipment and AT for evacuees

Portlight: has provided inclusive relief to people with disabilities for twenty years. This group is working to ensure that people who require medical equipment and assistive technology have what they need after they evacuate.

Healthcare Ready

Healthcare Ready is a nonprofit that works to ensure patient access to healthcare, including medicines, during times of disaster. Healthcare Ready has activated its virtual Emergency Operations Center (EOC) to support healthcare and public health response operations to Tropical Storm Harvey.

How ALS Patients Can Help

Once you’ve been diagnosed with ALS, it’s easy to feel like you just don’t have many options, but there are ways you can make a difference.

How You Can Help People With ALS

We all have a part to play in the fight against ALS! Your generous support funds critical research for better treatments and a cure for this disease. Here are a few ways you can help: