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Local Highlights

There is always so much happening in the ALS community! Check out some of the highlights here.

 

ALS Association- Care Services Events

Thank you for those who joined us at our Trach Panel on January 10th! You can watch the presentation here in case you were unable to attend using passcode *D2T%r0y . Save the Date for our upcoming panel on March 6th in honor of Women’s History Month.

 

To view the monthly event list, click here:

 

Brewed Awakenings | 7:30 AM

February 1- Register Here

February 15 – Register Here

February 29- Register Here

 

Newly Diagnosed Connection Group | 11 AM
Connection/Support Group for those individuals who are newly diagnosed ALS and for their family members

February 1 – Register Here

 

Bereavement Group | 11 AM

February 6- Register Here

 

Texas Connection Group | 12:30 PM

February 6- Register Here

 

Men’s Caregiver Group | 11 AM

February 12- Register Here

 

Navigating ALS: Understanding Research – February 13th at 12:30 PM
Navigating ALS is a special series for families who have recently had a loved one diagnosed with ALS or those who are curious about the disease. In in this session of navigating ALS attendees will gain a better understanding of how ALS research works, how researchers work together across the country and globe, and the Waze, those living with a disease can get involved.

Register Here

 

Youth Caregiver Event: Heart Check – February 20th at 6:00 PM
Join us for this special youth event as we cut out paper hearts and write what we love about our pALS. Please bring scissors, construction paper and markers, color pencils or crayons. For youth ages 7-12yrs.

Register Here

 

Young Adult Caregivers | 6:30 PM

February 22- Register Here

 

Running On Empty- February 27th at 11 AM
For caregivers of a person with ALS, taking time for self-care is more easily said than done. But putting off self-care can lead to burnout, making it more difficult to care for a loved one with ALS. Do you have days or even weeks where you feel you are simply “Running on Empty”?

Register Here

 

Save the Date- Women’s History Month- March 6th at 11 AM
In 2024, Women’s History Month celebrates the theme Women Who Advocate for Equity, Diversity, and Inclusion. The theme recognizes women who speak up and are leading change through their experiences, and throughout their life journeys. Join the ALS Association as we hear from a panel of remarkable women who are living with ALS, caring for loved ones living with ALS, and helping to change the world through their advocacy. We know that like us, you will be inspired by these courageous women who are fighting for equity and fairness in all areas of ALS.

 

In the News: New Hope for ALS Veterans

Veterans with ALS will receive groundbreaking cell therapy as a treatment for the neurodegenerative disease. A new clinical research trial at Michael E. DeBakey VA is offering Veterans with ALS hope for the future. Read more here. 

Mark Your Calendar for An ALS Spring!

We are excited to raise funds and awareness this Spring at our three exciting events: Sporting Clay Shoots in Houston and Dallas, and the Under Ballou Skies Golf & Party in Austin. These events will directly fund our mission work throughout the year. We appreciate our community partners that have already committed to being involved:

  • Respiratory Quality Services (RQS)
  • Harvey Builders
  • Marek Brothers
  • Savills
  • Window World
  • AssetWorks
  • Jones&Spross
  • Brady Goodwin with AllState
  • Homewell Care Services
  • Locke Lord LLP
  • Bateman (VSCfire)
  • Team Buoy
  • Merit Electric Company
  • Revenew International

We are so grateful for our corporate partners who make ALS community a priority. Thank you!

 

For more information on the Houston Shoot, please contact Danatria Spears, danatria.spears@als.org , the Dallas Shoot, Kathryn Bridwell, kathryn.bridwell@als.org, and the Golf & Party, Morgan Mix, morgan.mix@als.org.  

 

ALS Volunteer Opportunities | Join us February 20th!

Learn about impactful new volunteer opportunities where you can be part of the change.

12PM/Noon- Register Here 

6PM – Register Here

 

ALS Advocacy | Join us May 16th!

 

Join The ALS Association at The Texas Capitol on Thursday, May 16, 2024 from 9:00 AM to 3:00 PM for The ALS Association Texas Advocacy Roundtable in the Extension Legislative Conference Center. This is an opportunity for advocates to obtain a recap of the 88th Legislative Session, learn about some of the key policies for the 89th Legislative Session, meet our team and lawmakers as we discuss the importance of grassroots advocacy. This is an opportunity for you to learn how to become a district lead, and how you can take an active role in our advocacy outreach. Register here to RSVP. 

 

Becoming an Advocate
We want you to become an advocate. In order to make ALS a livable disease, we need people to advocate for laws to change at the state and federal levels of government. Your experience is valuable to educating our lawmakers about ALS. Take action today and support us in our fight against ALS. 

 

Sharing Your Story
Another way to get involved is to share your story. Whether as a person living with ALS or as a caregiver or loved one to someone living with ALS, sharing your story can help others in the ALS community and beyond feel connected to the impact of this disease. Your personal perspective plays a significant role in educating and mobilizing policymakers to allocate funding to develop treatments for ALS and work to improve the lives of people living with ALS. Our lawmakers need to know how ALS affects someone personally and their families and caregivers.