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Remembering Stephen Winthrop, Chair of The ALS Association Board of Trustees

by | Jan 4, 2019

We’re sad to report that Stephen Winthrop, Chair of the ALS Association Board of Trustees, passed away peacefully on December 24th while surrounded by loved ones. Stephen will be remembered as a champion for those with ALS and a true ALS Hero.

On November 6th, 2013 Stephen Winthrop, Chair of The ALS Association Board of Trustees, was diagnosed with ALS. Without missing a beat, Stephen and his wife went to work spreading awareness of the disease through their Facebook page WillWinAgainstALS, and through fundraising- regularly being recognized as the highest earners for The ALS Association’s Massachusetts Chapter during the Walk to Defeat ALS.

Stephen taking part in the Ice Bucket Challenge

In his five years of living with ALS, Stephen was recognized with a Hero Award from the ALS Association, participated in clinical trials to further research efforts, took part in the Ice Bucket Challenge and served as Chair of the Board of Trustees. Stephen will always be remembered for his tireless work to spread awareness of this devastating disease.

“Over the past few years I had the privilege of working with Stephen on several occasions. Stephen led with wisdom, grace and showed true perseverance. He never let ALS define him. Stephen truly made a huge impact on the path to creating a world without ALS. He will be missed.”

Tanner Hockensmith
Executive Director
ALS Association of Texas

How ALS Patients Can Help

Once you’ve been diagnosed with ALS, it’s easy to feel like you just don’t have many options, but there are ways you can make a difference.

How You Can Help People With ALS

We all have a part to play in the fight against ALS! Your generous support funds critical research for better treatments and a cure for this disease. Here are a few ways you can help: