Paul and Kathy Tavano are no strangers to ALS. In August of 2009, Paul was diagnosed after having symptoms of weakness in his hands and muscle spasms. When he and his family heard the projected lifespan of 2-5 years after an ALS diagnosis, and how there was nothing they could do about it – they wanted to take action. CURE ALS was formed and they have since set out on a mission to change that outcome, if not for their family, for others somewhere down the road.
“When you are diagnosed, friends and family want to help but there isn’t much they can do. So we got together with a few of our close friends and we were all golfers and had been to different charity events and felt that we could put on an event and raise funds that we would earmark for research. I was very adamant that I didn’t want it to be for me, and that I wanted it to be towards research. This year will be our 11th tournament, but this year it will be virtual,” said Paul Tavano.
As the 11th Annual CURE ALS golf tournament was approaching, Paul and Kathy kept hearing that research labs and non-profits were struggling because of the lack of funding and how fundraisers were being canceled due to covid-19. They sat down and said, “ALS isn’t going to stop, so neither are we.” This year the CURE ALS golf tournament is now a virtual one. So now anyone around the country can participate, and the hope is that not only will there be more golfers, but more people becoming aware of ALS and the need for research.
“The hope is that the research that is going on will show and develop treatment and help extend the life of those who have the disease. It may or may not help me, but it will help someone down the line. I hope that somehow, someway we have been able to make a difference, and hopefully, we will be able to see that difference,” said Paul.
The Tee Up to CURE ALS virtual tournament is September 11-25th and registration is open! If you aren’t sure how to help someone you know with ALS, this is a great way to show your support and have a little fun!
“Our tournament has always been about raising funds for research, having fun, and allowing the collective group to hear what is new about ALS research. Virtually you can have fun and help support research for ALS,” said Paul.
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For more information about CURE ALS, visit WeWillCureALS.com