by wpengine | Dec 21, 2017 | News, Stories
When my father was diagnosed with ALS in November 2011, he and my mother began attending an ALS multidisciplinary clinic. He had been sick for three to four years and had seen doctor after doctor trying to get a diagnosis. When he started attending clinic, the ease...
by Elise Bernard | Jun 27, 2017 | Fundraising, Research
Three days before Christmas 2009, Turner Corbett’s family got the devastating news that his mom, Jennifer, had been diagnosed with ALS. Turner was just 12 years old. Wanting to make the most of a difficult situation, in 2015, Turner created a benefit event that would...
by Tanner Hockensmith | May 6, 2017 | Research, Research News
Based on information as of 5/5/2017 What is Radicava? Radicava™ (edaravone) is a prescription medicine approved by the U.S. Food and Drug Administration (FDA) to treat people with amyotrophic lateral sclerosis (ALS).1 In clinical trials, some people given Radicava...
by Tanner Hockensmith | May 5, 2017 | Research, Research News
Radicava is First Approved Treatment for ALS in Decades The Food and Drug Administration’s (FDA) announced today that it has approved Radicava (edaravone), the first new treatment approved specifically for ALS in 22 years. The FDA approved Radicava less than a year...
by Tanner Hockensmith | May 5, 2017 | Research
ALS is a devastating disease with no cure. But researchers are working to change that. The increased awareness and donations provided by events like the ALS Ice Bucket Challenge—and by people like you—are making a real difference in the pace of discoveries, bringing...
