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The Walk to Defeat ALS: A Perfect Day

by | Nov 6, 2017

Tom Frugé was diagnosed with ALS in May 2017 and attended the Fort Worth Walk to Defeat ALS on Saturday, November 4, 2017. His Walk team, Team Tom, is the top fundraising team in Texas in 2017, raising over $40,000. Read about his experience at the Walk. 

Many of you know I have my good days and my bad days, and that’s just the way it is, but today was a really good day.

Frankly, that doesn’t do it justice.

A few of you also know that I’m really trying to create and recognize those “perfect moments.” Quiet dinner with the one you love, a day at the playground with your grandson, a wonderful talk with your daughter under a full moon, etc., etc.

My ultimate goal is to string together so many perfect moments in a day to create perfect days. Today, I had so many perfect moments – hugs, laughter, and tears with people I love and respect. Today was a Perfect Day.

I’ve read Lou Gehrig’s farewell speech a number of times, a couple before my diagnosis and more since then, and every time I understand it a little better. But today, I finally get it.

It’s rooted in a tremendous outpouring of love he received. Now I’m not saying that I’m any Lou Gehrig, or that today was Yankee Stadium, but the amount of love I felt was incredible. So I’m going to steal his famous quote and hope he forgives me when we meet.

“…today, I consider myself the luckiest man on the face of the earth.”

Tom

How ALS Patients Can Help

Once you’ve been diagnosed with ALS, it’s easy to feel like you just don’t have many options, but there are ways you can make a difference.

How You Can Help People With ALS

We all have a part to play in the fight against ALS! Your generous support funds critical research for better treatments and a cure for this disease. Here are a few ways you can help: